Caregivers of medically complex children face increased social isolation, limited community and emotional support, and profound unmet psychosocial needs.
Nearly half receive little to no help from family or friends.Our Mission
Because caregivers with stronger support systems are better equipped to navigate caring for a medically complex child, we create opportunities for Aicardi Syndrome families to connect with one another and their communities, so no one has to walk this journey alone.
Awty
The Awty Fund is a 501(c)(3) nonprofit organization established in memory of Awsten “Awty” Galvan, who passed away from complications of Aicardi Syndrome on July 21, 2026, at age seven.The Awty Fund is led by an all-volunteer board of nonprofit professionals, Aicardi Syndrome family members, and medical professionals who bring expertise, lived experience, and a shared commitment to one goal: ensuring no family walks this journey alone.How we help
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We provide families with trusted education, practical resources, and guidance to help them navigate every stage of an Aicardi journey. Our goal is to make sure families have somewhere to turn for answers, understanding, and support, from the moment of first diagnosis to every chapter that follows.
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From supporting the Aicardi Syndrome Family Conference to helping families build strong support systems in their own communities, we create opportunities for connection, understanding, and belonging. Our goal is to ensure every family has people they can turn to, learn from, and lean on throughout their journey.
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We provide financial support that helps make connection and community accessible to every Aicardi family. From being able to attend a family conference, take a much-needed respite break, or create opportunities to connect with loved ones and their local community, we help ensure finances never stand in the way of building the relationships and support systems families need.
Your support helps Aicardi families find connection, community, and the resources they need through every season of their journey. Together, we can make sure every family has somewhere to turn.