Additional Resources

Chive Charities is a 501(c)3 organization that provides Veterans, first responders, active duty military, individuals with rare medical conditions and their immediate family members with life-changing grants. From adaptive tricycles and robotic walkers to service dogs, and a wide range of mobility and therapy items, Chive Charities fills the gaps where insurance and other resources cannot.

The Sadie McCann Fund is a charitable organization committed to assisting families who are caring for a child with Aicardi Syndrome. The Fund provides direct financial assistance to support families and children living with this challenging diagnosis. Examples of how grant funds can be used include (but are not limited to): specialized equipment, home  modifications, therapeutic services, other medical expenses. 

The aicardi syndrome foundation is a volunteer-based, non-profit organization dedicated to raising research funds and awareness for Aicardi syndrome. Registering your child with the Aicardi Syndrome Foundation allows your family to receive the latest research news, announcements and professional information as quickly as possible, as well as learning about ongoing research studies that your child may qualify for.